Fight MS

WalkMS – over $1K raised so far!

For a second time, I have just broken past my fund raising goal for the Greater LA Walk MS!

My original goal of $500 was quickly surpassed within four days of my announcement, in tribute to my wife Nahleen who inspires me in her battle with MS every day and the 84-year-old woman from New Jersey who rides her single-speed bike 150 miles every year to raise money for MS. It is slightly over two weeks later and my increased goal of $1,000 was just met!

Tremendous thank yous to everyone who has donated and emailed or messaged me with enthusiastic support!

What should my next goal be? How much would you pay to see me in a heels and dress? Yes, that’s right. In case you forgot, I’ll be dressing as the lady pictured above. Click the image to read the original CNN article, which helped me come up with this goofy idea.

Here’s my updated and spruced up Walk MS Page. And here’s our team page (we’d love to have you join our team! Don’t worry, you don’t have to dress up like me.).

WalkMS 2010 – In a Dress and Heels

Once again my wife Nahleen and I are very excited to be participating in WalkMS, Sunday, April 18, at the Pasadena Rose Bowl. Thank you so much for the generosity and kind thoughts last year.

With health care now a hot button and the economy still struggling (to put it mildly), it makes giving harder than ever, yet more important than ever. Thanks to the money and awareness we’ve raised, the National MS Society has done great work to move research forward. We are closer than ever to having an oral medication available that could potentially replace the frequent self-injections currently used for treatment. I think most people would much rather take a pill than stab themselves with a needle every other day. Nahleen and many others with MS have been holding out for that for a long time, and we’re really close to that kind of treatment hitting market.

Beyond that, there are lots of other treatments at risk of being scaled back or eliminated entirely either at the National MS Society or in the medical field. Truly, every bit counts.

So to make this a little more interesting and maybe entertaining for you, I’ve decided to do something different for this year’s WalkMS. Last October, I read a story about an 84-year-old woman named Lan Yin “Eiko” Tsai who rides her old one-speed bike 150 miles for the New Jersey City to Shore event to raise money for MS. She’s been doing this for 26 years – always in a dress and heels. The article has this great picture of her in a green turtleneck dress and embroidered jacket. She is pretty inspiring. Then I started to think about the daily discomfort and struggles that people with MS go through every day. I see it in Nahleen every day. Her courage and discipline are also inspiring. So I thought maybe I could make my 3-mile walk this April in Pasadena for WalkMS more reflective of that daily discomfort while at the same time paying tribute to Eiko and Nahleen. And at the same time, looking like a dork. I know I’m good at doing that

So I’m doing WalkMS in a dress and heels.

I hope this silliness will inspire you to give and/or spread the word to others and/or join our team. Click on that link to go to my personal page at the National MS Society to get involved. I also welcome any donations in the form of costuming or other ideas to pull this off.

Thank you for reading!

Greater LA WalkMS 2009

MSwalk09-feetI just got back from a nice long weekend vacation to the Sequoia National Park. Absolutely stunning and wonderfully relaxing. Just what we needed.

While walking along trails weaving around mammoth trees thousands of years old, I was sometimes reminded of the last time Nahleen and I did some heavy walking. 

It’s been about a month since the WalkMS event for Greater Los Angeles. We walked the same path as last year, but the Rose Bowl was much hotter. And of course, the current financial End Times made fundraising more challenging. Despite that, our team still managed to raise $10,000. And where people couldn’t donate, they were inspired to support us in other ways, either by walking with us, walking at local events in their neighborhood, talking about MS to others, or sending encouraging thoughts our way. Everything made a difference.

Like last year, the money we raise will go directly to fighting multiple sclerosis and providing resources to making daily life easier for those with MS.

Once again our friend Rose Kwasnicki and her camera was there with us. Here’s some choice moments.

(Oh and yes, those are Nahleen’s feet at the top picture.)

 

MSwalk09-teamHere is us with the rest of TeamMS. Lots of people came back from last year and we also had some new faces! Great team and great group of people! Kelly Garver (center with the black shirt) was a great captain. Zena Leigh returned with her husband Conor Logan of The Logan

Of course, we weren’t the only people there. 

MSwalk09-crowdHey, down in front! There’s always that guy.

MSwalk09-vipBecause of our mighty fundraising efforts from last year, Nahleen and I were given special VIP passes. This gave us access to a special tent with refreshments, food and, most valuable of all, shade. 

It also made us frighteningly cheery.

MSwalk09-coreynahleenvip… although everyone around us was pretty much ambivalent.

Once we composed ourselves, we were back to the task at hand. Walking!

MSwalk09-nahleenteamwalkWe sure look happy and energetic. Nothing can stop us!

MSwalk09-teambreakOK… so maybe we took a little break. But it wasn’t our fault. It would never have happened if it wasn’t for all that walking. And the hot hotness. And not the sexy kind of hot hotness, but the temperature kind where you get unsexy hot. For further proof, there’s this:

MSwalk09-coreyhot

But we got back on our feet and made it to the finish line!

MSwalk09-nahleenfinishHere’s Nahleen at the finish line getting her Medallion of Walkery! 

Exhausting yet inspiring. Thank you to everyone who participated in some way. And congratulations to those who walked. Each foot step is bringing us closer to putting multiple sclerosis in its place, and giving hope and strength to those who live with it still.

WalkMS ’09 is nigh

Thank you so much for all of you who have donated! This year in particular, every dollar is precious to everyone. It takes a lot of courage to part with your hard-earned money no matter how worthwhile the cause. Thank you also to those who joined our team or are also walking with another team. I’m inspired by the great generosity and selflessness I’ve witnessed this year.

For those who have yet to donate, it’s not too late. In less than 24 hours, Nahleen and I will be putting foot to pavement. Every dollar makes a difference. $1. $2.50. $5. $25. Whatever you’re comfortable with, it does just as much good. I’ve seen first hand the invaluable work the National MS Society does. They have directly helped my wife and I in the day-to-day challenges of multiple sclerosis. If you can’t donate this year, I understand. Your emotional and spiritual support is equally valuable.

Like last year, I’ll be bringing some cameras along. If something comes together, I’ll post a video. I’ll also post pictures.

Thank you for your support!

A Certain Kind of Beauty doc raises MS awareness

The kind folks at Film Truth Productions released a powerfully honest documentary last year called A Certain Kind of Beauty. It follows the struggle of Martha’s Vineyard resident Dan Aronie as he fights with multiple sclerosis over a six-year period.

The entire documentary is now viewable online for free thanks to a partnership with SnagFilms. I’m supposed to be able to embed a player here but WordPress is notoriously resistant to embed codes. So, you can go right here to see it.

As a reminder, my wife Nahleen (who has MS) and I are participating in the Los Angeles Walk MS.

Quick links: